First Benlysta Treatment

On Friday, I had my first treatment of Benlysta. I’ll admit I was very apprehensive. I had done a lot of researching of the drug online and read a lot of different reviews and blogs on how different people tolerated the drug. Some people said they instantly felt more energy, others said no change, but the ones that concerned me were the reports of being sick for days with nausea weakness, headaches.

I scheduled my appointment for a Friday with the hopes that if I did end up feeling horrible, I’d still have the weekend to rest and wouldn’t have to miss work. The other thing I was anxious about was driving myself there. I live an hour and half away from my doctors office/ infusion center and my husband had a presentation that morning and would be unable to take me. And to make matters worse, we were expecting a few inches of snow.

Well, I was pleasantly surprised with my experience. When I arrived I was seated in a reclining chair, which had a nearly full recline so I could lay down and sleep. The center had snacks and tea/coffee. They also provided pillows and heated blankets. The nurses were very friendly and made me feel comfortable and put me at ease.

They started with vitals, hooked me up to an IV, drew some blood, and then started running the drug. The medication ran for an hour and was pretty uneventful. I didn’t feel any pain at the IV site, only a little cold. I didn’t experience any side affects. After the drug was done running, they ran normal saline for about an hour and half to monitor me for any reactions. Basically I just slept and watched TV the whole time.

This weekend wasn’t too bad either. I had a lot of energy but made sure not to over exert myself and get some rest.I’ve had a bit of a cough, but nothing major. So, so far, so good.

Despite all my anxiety, everything worked out well for me. I’m really excited to see what’s going to happen with this drug and feel hope that I may go into remission. I have my next infusion next week and we will see how it goes. I will keep you posted. Lots of prayers as I go on this journey!

4 thoughts on “First Benlysta Treatment

  1. Hi! Doc
    Great to know that ur doing so good after benlysta!
    Is it ok for anybody with lupus to take this medication? Or only for some patients .
    Also, doc is it safe to take influenza and pneumococcal vaccines for lupus patients ?

    Sorry im asking too many questions .
    Eagerly awaiting your kind reply.
    My Prayers with you every day!

    1. Those are actually questions that have to be answered by your doctor as every patient is so different and treatment has to be tailored to each individual. Sorry, but I can’t really provide a general answer. And don’t feel bad about asking questions. I enjoy answering them. Thank you for your prayers!

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