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  1. I am also an MD with SLE and it has ended my career in medicine- I was diagnosed at age 45, while working 60+ hours a week in my family medicine practice and urgent care, and soon ended up hospitalized. I tried to return to work 5 times over the past three years but every attempt haas ended in disaster- the last one with Lupus Cerebritis. I’m now on disability, barely surviving financially, raising my two kids with almost no child support, paying for COBRA until my Medicare starts in February 2019. I have a new partner but he has had to change careers in order to care for me and the kids and is now in nursing school (he was in IT but was never home). Everything I worked so hard for is gone, I’m in a deep depression and mourning the loss of my career, my identity, stability and my life as I knew it. I am treated like I am invisible by my colleagues, so the support structure I thought I had is an illusion. I experience so much psychic pain along with the physical pain I can not tell the difference at times.

    1. I am so sorry to hear this. I fear the same things. I fear it more now as sometimes I feel like I can’t remember things as well as I used to. And I understand how incredibly painful it is to lose your support group. I don’t know what your religious beliefs are but I firmly believe that where people fail, God never does. He is what calms my fears and comforts my pain. I also wonder if during this hard time it may help to seek help from a psychologist/psychiatrist. Also Inam here if you need to vent.

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